Arts in health : designing and researching interventions
I The context for arts in health interventionsA history of the use of arts in healthThe birth of the artsMyths of the Ancient worldTheories of the Middle AgesEnlightenment rationalizationTwentieth century explorationSummaryReferencesThe theoretical background to arts in healthTheoretical developments in healthWhat is health?A biomedical model of healthPublic healthPsychosomatic medicineBehavioural medicineA biopsychosocial model of healthMental healthArts in health: opportunities within health theoryBio-The brainOther organsPhysical functionBiological markersPsychoCognition and developmentStress, anxiety, and painEmotions and mental healthHealth behavioursSense of 'self'Illness cognitionsSocialSocial supportSocial identity and relationshipsSocial behavioursSummaryReferencesThe political background to arts in healthArts policy papersIrelandUKArts Council EnglandArts Council of WalesUSAHealth policy papersUKAustraliaNordic countriesSummaryReferencesDefining arts in healthWhat is arts in health?Continua modelsVenn diagram modelDoes a model exist?Types of arts in healthArts in the healthcare environmentParticipatory arts programmes for specific patient groupsGeneral arts activities in everyday lifeArts in psychotherapyArts in healthcare technologyArts-based training for staffOverviewArts in health promotionRelated fieldsSummaryNoteReferencesII Designing and delivering arts in health interventions Conceptualizing and planning interventionsStep 1: Map the environmentStep 2: Gain concrete experienceMap the care processShadow the target groupUndertake discovery interviewsStep 3: Conduct reflective observationCarry out a formal consultationResearch related projectsDevelop a problem treeStep 4: Undertake abstract conceptualizationGenerate ideasPlan a logic modelMap the visionTarget groupFinanceInternal processesLearning and growthSummaryReferencesImplementing and evaluating interventionsStep 5: Carry out active experimentationPilot the interventionEvaluate the pilotQuantitative evaluationsQualitative evaluationsRemap the visionDraw up a case for supportStep 6: Review and actHone the interventionEvaluate the interventionManualize the interventionBrief nameWhy-4. WhatWho providedHowWhereWhen and how muchTailoringModifications-12. How wellStep 7: ReconnectRemap the environmentAssess the feasibility of expansionInnovateHave a mission that mattersThink big but start smallStrive for continual innovation, not instant perfectionLook for ideas elsewhereShare everythingSpark with imagination, fuel with dataBe a platformNever fail to failSummaryReferencesPartnerships and fundingDeveloping partnershipsThe tender processDeveloping a briefSubmissionsEvaluating tendersDrawing up contractsPreparations and support in delivering a projectPreparation bookletsInduction daysShadowing sessionsTraining programmesSupervisorsFeedbackMonitoring and evaluationFunding a projectSelf-fundingParticipant fundingFundraisingCrowdfundingVolunteer programmesIn-kind supportGrant fundingPrivate or individual sponsorshipResearch fundingSocial investmentPer cent schemesCommissioningSummaryReferenceWorking in healthcarePatient safeguardingWorking with patients and the publicPatient confidentialityFlagging causes for concernPhotography and filmingHealth and safetyStandard infection control precautionsRisk assessmentsOccupational healthEngaging patients and staffSummaryReferencesIII Researching arts in health interventionsAn introduction to researchWhy research?Is it research? Evaluation versus researchEvaluation and research versus auditsArts in health 'exceptionalism'Types of disciplinary workingSummaryResearch tips and resourcesTop tips for researchRecommended journalsRecommended conferencesReferencesA step-by-step approach to the research processDeveloping a research studyIdentifying the research problem and evidence baseDeveloping research questionsDeveloping a theoryPiloting and feasibilityChoosing a study teamPatient and public involvementDesigning a research studyQuantitative strategiesStudy designsResearch methodsQualitative strategiesStudy approachesResearch methodsMixed-methods strategiesEconomic evaluationsProcess evaluationsRunning the research studyResearch implementationOutcome of the research studyReporting resultsDisseminationFurther implementation of the interventionSummaryReferencesWriting a research protocolAn introduction to protocolsWriting a protocolCovering pageFull study titleInternal reference number/short titleEthics referenceDate and version numberInvestigatorsSponsorFunderConflict of interest statementConfidentiality statementChief investigator signatureFormatTable of contentsSummary informationSynopsisAbbreviationsBackground and rationaleObjectives and outcomesPrimary objectiveSecondary objective(s)Tertiary objective(s)Study designParticipant identificationStudy participantsInclusion criteriaExclusion criteriaStudy proceduresScreening and eligibility assessmentRecruitmentInformed consentPotential risks and benefitsRandomization, blinding, and code-breakingBaseline assessmentsSubsequent assessmentsDiscontinuation/withdrawal of participants from studyDefinition of end of studyInterventionAnalysisDescription of analytical methodsSample sizeData managementAccess to dataData recording and record keepingQuality assurance proceduresEthical and regulatory considerationsDeclaration of HelsinkiApprovalsReportingParticipant confidentialityFinance and insuranceFundingInsurancePublication policyReferencesSummaryReferencesResearch ethicsGeneral ethics of conductRespectCompetenceResponsibilityIntegrityDeveloping a research studyDesigning a research studyRunning the research studyOutcome of the research studyData analysisDisseminationObtaining ethical approvalsResearch protocolParticipant information sheetInvitation to participateWhat is the purpose of the project?Why have I been chosen to take part?Do I have to take part?What will taking part involve?What are the disadvantages and benefits of taking part?Will my data be kept confidential?What will happen to the results of the research project?Who has reviewed the project?Who is organizing and funding the study?Further informationParticipant consent formConsent statementsSummaryReferences