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ACKNOWLEDGMENT

Professor Bern-Klug thanks the Obermann Fellows Program for support.

REFERENCES

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Bern-Klug, M. (2004). The ambiguous dying syndrome. Health & Social Work, 29(1), 55–65.

Buchanan, R. J., Rosenthal, M., Graber, D. R., Wang, S., & Kim, M. S. (2008). Racial and ethnic comparisons of nursing home residents at admission. Journal of the American Medical Directors Association, 9, 568–579. CDC (2012). NCHS, Underlying cause of death 1999–2009 on data available on CDC Wonder Online Database, released 2012. Author generated data.

Eljay, L. L. C. (2012). A report on shortfalls in Medicaid funding for nursing home care. Report prepared for the American Health Care Association. Accessed April 7, 2012. ahcancal.org/research_data/funding/Pages/ EljayReportOnMedicaidFundingS hortfalls.aspx

Jones, A. L., Moss, A. J., & Harris-Kojetin, L. D. (2011). Use of advance directives in long-term care populations. NCHS Data Brief, #54.

Kaldjian, L. C., Curtis, A. E., Shinkunas, L. A., & Cannon, K. T. (2009). Goals of care toward the end of life: A structured literature review. American Journal of Hospice

& Palliative Medicine, 25, 501–511.

Kane, R. L. (1996). The evolution of the American nursing home. In R. H. Binstock,

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& Smith, A. K. (2010). Length of stay for older adults residing in nursing homes at the end of life. Journal of the American Geriatrics Society, 58, 1701–1706.

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My Inner View. (2010). 2009 National survey of consumer and workforce satisfaction in nursing homes. Author. Accessed July 5, 2012. survey.myinnerview.com/ publications/whitepapers.php?id=66

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National Hospice and Palliative Care Organization. (2012). NHPCO facts and figures Hospice care in America, 2011 edition. Accessed July 8, 2012. nhpco. org/i4a/pages/index.cfm?pageid=5994

NCHS. (2006). Nursing home facilities. Table 1: Number and percent distribution of nursing homes by selected facility characteristics, according to the number of beds, beds per nursing home, current residents, and occupancy rate: United States, 2004. Data from the National Nursing Home Survey. Accessed November 4, 2011.

NCHS. (2008). Nursing home current residents. Table 12: Number and percent distribution of nursing home residents by length of time since admission (in days) and mean and median length of time according to selected resident characteristics. U.S.: 2004. Data from the National Nursing Home Survey. Accessed May 2, 2012. cdc.gov/nchs/nnhs.htm

National Consensus Project for Quality Palliative Care. (2009). Clinical practice guidelines for quality palliative care (2nd ed.). Pittsburgh, PA: Author.

Nuland, S. (1994). How we die: Reflections on life's final chapter. New York, NY: Knopf. POLST (2012). National POLST paradigm programs (map). Accessed July 7, 2012. ohsu.edu/polst/

Spillman, B. C., & Lubitz, J. (2002). New estimates of lifetime nursing home use; have patterns changed? Medical Care, 40, 965–975.

Volicer, L. (2005). End-of-life care for people with dementia in residential settings (White paper). Chicago, IL: Alzheimer's Association.


 
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