Peer Research in Health and Social Development: International Perspectives on Participatory Research


Section I. Critical perspectives on peer researchPeer research in health and social development: Understandings, strengths and limitationsIntroductionUnderstanding peer researchRoles and definitionsThe origins of peer researchContexts and applicationStrengths of peer researchEnhanced accessInsider insightFacilitating impact and changePursuit of social justiceLimits of peer research - critical reflectionsMethodological rigour and credibilityEthical concernsNavigating changing relationships and identitiesPower relationsSummary of contributionsReferencesFrom the researched: Decolonising research praxis in Papua New GuineaIntroductionBreaking the traditions of research in Papua New GuineaThe value of the ‘other’ in knowledge productionResearching ‘at home’It’s not simply a matter of being a peer or notBeing a peerOne leg in and one leg outAn outsiderOn the peripheryReflecting on the benefits and challenges of becoming the researchersLocal ownership, trusted relationships, local impactRich data, interpretation and co-production of knowledgeThe challenge of authorshipConclusionsReferencesPrincipled tensions when working with peer researchers: Community'based participatory research with five Pacific Islander communities in Southern CaliforniaIntroductionPeer researcher relations and practices in community-based participatory researchUnderstanding peer researchLocating peer research in community-based participatory researchTensions in community-based participatory research practiceResearching with Pacific Islanders in Southern CaliforniaWorking with community researchers on WINCART projectsAcademic and community researcher collaborationCritical reflections on implementing peer researchThe path to equity: participation vs. inclusionPeer insider vs. established outsider researcherInternal tensions within community-based organisationsConclusionsReferencesThe limits of peer research? Reflecting on analytic challenges during health and social development programme research in Rwanda, Nepal, Ecuador and UgandaIntroductionThe rise of peer research in youth-focused international development programmesPeer researchYouth-led research in international health and social development sectorsThe analytic limits of peer research in evidence-based programmingWhen insider perspectives are not enoughWhen meanings get mixedReflecting on the limits of peer researchNew directions for peer researchAcknowledgementsReferencesSection II. Working with hard to reach participantsPeople with dementia as peer researchers: Understanding possibilities and challengesIntroductionBackgroundWorking with people with dementia as peer researchers during data analysisPeer researcher recruitmentPeer researcher analysis workshopsRecognising the expertise of people with dementia in data analysisConfirming the interpretation of dataBringing new understandings to data analysisIdentifying alternative lens of analysisUnexpected challenges of working with peer researchersDiscussionRealising agentic potential in the peer researcher roleDistinguishing the person with dementia’s voice from othersDistinguishing between peer research and patient and public involvementRevaluing the practicalities of peer research approaches in dementia researchConclusionReferencesGender diverse equality and well-being in Manipur, North East India: Reflections on peer-led researchIntroduction - Gender transition and recognition in IndiaTransgender recognition in ManipurLaw and transgender advocacy in India and ManipurThe projectDeveloping peer-led research and advocacyData, stories and trainingImpact and ongoing actionsConclusionNoteReferencesCo-constructing knowledge about the well-being outcomes of unaccompanied migrant children becoming ‘adult’IntroductionBackgroundMethodologyShared reflections on the strengths and limitations of the peer research approachThings that worked well with the peer research approachSustaining training and supportNotions of community and power imbalancesPeer researchers’ positionalityEmotional labourDiscussion and conclusionNotesReferencesParticipation and power: Engaging peer researchers in preventing gendenbased violence in the Peruvian AmazonIntroductionThe challenge of gender-based violence prevention in extreme settingsEngaging peer researchers in violence prevention using participatory action researchParticipation and powerPower through participationParticipation as a tool to reveal power structuresReflections and conclusionsReferencesSection III. Understanding diverse issuesParticipatory visual research exploring gender and water in Cameroon: A workshop modelIntroductionA workshop model for participatory visual research designWomen and water wahala: the studyQender and water in CameroonCollaborative designFacilitator training, pilot study and recruitmentPhotovoice and participatory video workshops in communityParticipatory analysis workshopOutreach and disseminationFindingsReflecting on participation and powerWomen facilitating peer research processesWomen facilitating togetherWomen studying upConclusionReferences‘I am the bridge’: Peer research with women with disabilities in the Philippines and AustraliaIntroductionBackgroundPeer researchers’ reflectionsEmotional labour and unsettled identitiesSupport and safety for peer researchersPeer research as a strategy towards social changeConclusionReferencesReflecting on the role of peer researchers in collaborative Indigenous food security research in the Inuvialuit Settlement Region, CanadaIntroductionBackgroundInuit food systemsCommunity leadership and control of research with InuitInuvialuit food security research programA participatory food costing project - working with Inuvialuit peer researchersWho were the peer researchers?What training did the peer researchers participate in?How were peer researchers involved in the project?Reflecting on working with peer researchersBuilding community relationships and capacity in remote settingsPeer researcher identitiesSupporting Indigenous-led food security research and actionMoving forwardReferencesSection IV. Ethical considerationsSocio-ethical considerations in peer research with newly arrived migrant and refugee young people in Denmark: Reflections from a peer researcherIntroductionWorking with migrant and refugee peer researchersThe RefugeesWellSchool projectWorking with Alaa, a Syrian peer researcher living in CopenhagenSocio-ethical considerations in peer research with migrant and refugee young peopleBeing a peer researcher was a rewarding experienceEstablishing rapport because ‘we speak the same language’The difficulty of being in ‘a space in between’: Being a ‘sister’ and a ‘researcher’Final thoughtsAcknowledgementsReferencesThe ethical dilemmas of working safely with community researchers: Lessons from community'based research with lesbian, gay, bisexual, transgender and queer communitiesIntroductionBackgroundMethodsStudy 1 : Understanding access to HIV-related and gender-affirming healthcare for trans women with HIV in Canada - a mixed methods studyStudy 2: Towards an understanding of structural drivers of HIV/STIs and protective factors among sexual and gender minority youth in Kingston, JamaicaStudy 3: Using performance ethnography as an innovative approach to challenge stigma and promote empowerment among sexual and gender minorities in Swaziland and LesothoEthical dilemmas of working safely with community researchersPreventing exploitation and tokenismAcknowledging challenges of navigating multiple roles and relationshipsStigmatisation within and beyond the research projectPromoting mental and physical well-beingWorking safely with community researchersReferencesBlurred lines: Treading the path between ‘research’ and ‘social intervention’ with peer researchers and participants in a study about youth health in South AfricaIntroductionThe location and relevance of research sitesA comtnunity-located peer-led research approachThe case of the absent ambulanceConclusionAcknowledgementsNoteReferencesSection V. Influencing policy and practiceFarmer-led change: Addressing environmental and health problems caused by widespread pesticide use in Costa Rica, Nicaragua and HondurasIntroductionComtnunity-based pest management projectPeer research through farmer-led demonstration plotsRecruiting, training and supporting farmer peer researchersDissemination of findings through demonstration days, project meetings, final symposiumChanges related to well-being and sustainabilityReflections on working with farmer peer researchersBenefits of participation to the research and to peer researchers themselvesSuccesses and challenges in the peer research processReflecting on power relationships between team members and farmer peer researchersConcluding commentsReferencesUsing empowering methods to research empowerment? Peer research by girls and young women in Kinshasa, Democratic Republic of CongoIntroductionA girl-led peer methodologyPeer research findingsUnderstanding ‘empowerment’Social norms and pressuresPrecarious life experiencesReflections on the peer research processNew skills and competencies for researchersWider economic and social impact on peer researchersManaging research ‘quality’Managing riskLonger-term impacts of peer researchConclusionReferencesLessons learned from Australian case studies of sex workers engaged in academic research about sex worker health, well-being and structural impedimentsIntroductionResearching for, about and with sex workersSex worker peer research practiceTrans and Male Sex worker (TaMS) projectLaw and Sex worker Health (LASH) 2.0 studyWhat drives changes to policy and practice?Recognising the motivations, needs and roles of all research partnersPower dynamicsAdvocacy for sensible public policyConclusionReferencesThe lasting impact of peer research with Indigenous communities of Guyana, South AmericaIntroductionBackgroundMethodsFindingsChanging worldviews and self-perceptionsIncreased capacity of individuals and communitiesChanging worldviews of decision makersSustaining impactDiscussionConclusionsAcknowledgementsNotesReferences
 
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