STATE OR REGIONAL INITIATIVES
British Columbia (Canada)
Fraser Health
Coaching on how to start a conversation with family, videos, and resources for ACP.
fraserhealth.ca/your_care/advance-care-planning
California
Center for Healthcare Decisions
Provides educational materials, trainings, and policy recommendations to help to implement new EOL policies and practices.
chcd.org/what-endoflife.htm
Coalition for Compassionate Care of California
A statewide partnership of regional and statewide organizations, state agencies, and individuals.
coalitionccc.org Coda Alliance
Community education to empower the public and help foster conversations about what it means to “live well” at the EOL; provides assistance with ACP and offers “Go Wish Cards” for facilitating conversations.
codaalliance.org/home.html
Colorado
Colorado Advance Directives Consortium
Information organization of professionals in health care, senior services, law, and ethics dedicated to improving the tools and processes for health care decision making in Colorado.
coloradoadvancedirectives.com
Hospice and Palliative Care of Western Colorado
ACP initiative with forms and links. hospicewco.com/i4a/pages/index.cfm?pageid=3633
Life Quality Institute
Advancing palliative care through education. Provides forms and educational presentations on ACP.
lifequalityinstitute.org
Connecticut
Connecticut Coalition to Improve End-of-Life Care
Working to improve the care of people who are dying and their families, and to ensure that every individual has information about and access to compassionate, quality EOL care. Provides booklet Beginning the Conversation about Death, Dying and End-of-Life Care in Connecticut.
ctendoflifecare.org/index.html
Delaware
Delaware Decisions
Devoted to educating the community about ACP. delawaredecisions.org/index.htm
Hospice and Palliative Care Network of Delaware
Working to improve access to quality EOL care by identifying barriers and working to overcome them. Provides slide show “As You Wish” on ACP.
hpcnd.org Florida
Department of Elder Affairs—State of Florida
Information on EOL initiatives and resources in Florida. elderaffairs.state.fl.us/doea/hospice_eol.php
Center for Hospice, Palliative Care and End-of-Life Studies
University of South Florida initiative to optimize care and systems of care for patients and families faced with non-curable diseases by generating new knowledge through interdisciplinary research, educating health and human service professionals, and influencing public policy to support quality EOL care.
health.usf.edu/medicine/eolcenter/index.htm#
Project Grace
Partnership of physicians, elder care providers, and concerned citizens of Florida dedicated to changing the death-defying, technology-driven approach to EOL care to a holistic, compassionate one that respects human dignity and the individual's best interests and personal wishes. Provides community and corporate presentations on ACP, booklets, links, and a resource library.
projectgrace.org
Georgia
Georgia Health Decisions' CRITICAL Conditions Planning Guide
Provides The CRITICAL ConditionsSM Planning Guide, emphasizing conversation and documentation of wishes for EOL care.
georgiahealthdecisions.org/critical1.html
Georgia Hospice and Palliative Care Organization
Information, education, and advocacy. Links for ACP. ghpco.org
Hawaii
End-of-Life Care for Hawaii's Ohana
Group-targeted messages and individually tailored support on EOL planning for family caregivers of elders receiving long-term care services. Downloadable booklets on various aspects of ACP. Initiative of the University of Hawaii Center on Aging.
hawaii.edu/aging/endoflife_hiohana.html Kokua Mau: Hawaii's Hospice and Palliative Care Organization Organization includes individual and organizational champions and supporters from hospitals, education, consumers, insurance, long term care and hospices; provides resources and links on ACP, including POLST.
kokuamau.org
Idaho
Idaho End-of-Life Coalition
Resources about compassionate care for people as they complete life, including resources on ACP.
idahoendoflifecoalition.wildapricot.org
Intermountain Healthcare
ACP conversation guide and planning booklet. intermountainhealthcare.org/health-resources/hospitalstay/Pages/ advanceplanning.aspx
Illinois
Chicago End-of-Life Coalition
Links and resources; speakers bureau on EOL care, including ACP. cecc.info/end-of-life-care
Iowa
Honoring Your Wishes (Iowa City Hospice)
Provides free consultations with ACP facilitators who help individuals explore options and prepare written plans.
iowacityhospice.org/advance-care-planning/honoring-your-wishes
Indiana
Indiana Hospice and Palliative Care Organization
Provides ACP booklet emphasizing conversation. ihpco.org/consumer/welcome-ihpcoorg-families
Louisiana
LaPOST: A Health Care Quality Forum Initiative
Initiative of the Louisiana Health Care Quality Forum to empower consumers and health care professionals with easy-to-access, simple-to-understand information and resources to make educated decisions about EOL care;
emphasis on LaPOST, a Louisiana version of POLST (Physicians Orders for Life-Sustaining Treatment).
lhcqf.org/lapost-home
Maine
Maine Hospice Council and Center for End-of-Life Care
Promoting excellence in EOL care; promotes POLST as well as EOL planning in prison.
mainehospicecouncil.org
MaineHealth Palliative Care Initiative
Promoting education and support for health care professionals to conduct conversations with patients and their families to help them make medical decisions about the care they wish to receive.
mainehealth.org/mh_body.cfm?id=5754
Massachusetts
Better Ending
Nonprofit community coalition in Central Massachusetts working to help individuals and their families plan for EOL and receive community support. Provides planning guide and “Personal Wishes” form.
betterending.org
Michigan
End-of-Life Care Committee
Organized to disseminate information about and engage in educational initiatives to promote knowledge about ADs and other planning processes associated with EOL decision making.
cahealthalliance.org/end-of-life_care_committee.php
MI Seniors: Michigan Office of Services to the Aging
ACP booklet.
michigan.gov/osa/1,4635,7-234----,00.html
Minnesota
Honoring Choices (Twin Cities Medical Society)
Designed to inspire and support community-based conversations regarding EOL care planning. Includes a toolkit of video, text, and web links to support these conversations.
honoringchoices.org Mayo Health Systems-Mankato
Resources for ACP, emphasizing how to have conversations with physicians, family, and friends; includes volunteer “ambassadors” who give consultation to patients and families on ACP.
mayoclinichealthsystem.org/locations/mankato/for-patients/ advance-care-planning/have-conversations
Missouri
Missouri End-of-Life Coalition
Education and empowerment for policy makers and dying persons and their families. Includes “Life Choices” workshop on ACP and other resources.
mo-endoflife.org
Montana
Montana Department of Justice: End-of-Life Registry and Advance Health Care Directives
Stores advance health care directives in a secure computer database and
makes these documents available to health care providers; links to toolkits on ACP.
doj.mt.gov/consumer/end-of-life-registry
Nevada
Nevada Center for Ethics and Health Policy (University of Nevada, Reno) Resources and links on ACP, including discussion guide for group discussions on EOL care.
unr.edu/ncehp/AdvanceCarePlanning.html
New Hampshire
New Hampshire Healthcare Decisions Coalition
Information to assist persons making EOL care decisions; planning guide, educational video, and booklet on ACP in the workplace.
healthynh.com/advance-directives-healthcare-decision-coali- tion-home.html
New Hampshire Hospice and Palliative Care Organization
Links and conversation guides on ACP. nhhpco.org/advance.htm New Mexico
Being With Dying
Initiative of the Upaya Institute in Santa Fe. Trainings for physicians, nurses, psychologists, social workers, hospice workers, and clergy to enhance competencies in EOL care and introduce innovative approaches in psychosocial, ethical, and spiritual aspects of care.
upaya.org/bwd
New York
Compassion and Support at End of Life (Rochester)
Collaboration to increase acceptance of ADs in the community; emphasis on Medical Orders for Life-Sustaining Treatment (MOLST).
compassionandsupport.org/index.php/for_patients_families/ advance_care_planning
Sharing Your Wishes (Western and Central New York)
Increasing awareness of ACP and the importance of health care decision making for older adults; promotes local coalitions and provides a planning guide and a tool kit for community engagement.
sharingyourwishes.org
Southern Tier End-of-Life Coalition (Binghamton)
Provides ACP workshops for religious, workplace, and social groups. steolc.org/index.html
North Carolina
End of Life Care Coalition (Greenville)
Presents ACP clinics and film series. endoflifecarecoalition.org/EOLCCEC/Home.html
North Carolina Medical Society
Video and other resources on ACP. ncmedsoc.org/pages/public_health_info/end_of_life.html
Project Compassion
Creates community and provides innovative support for people living with serious illness, caregiving, EOL, and grief; consult visits, workshops, and resources help people understand and communicate EOL care wishes; planning workbook Getting It Together: Planning Ahead.
project-compassion.org/home Ohio
Midwest Care Alliance
Ohio organization for hospice and palliative care. Provides ACP booklet,
Conversations That Light the Way. ohpco.org/aws/MCA/pt/sp/livingwills
Oklahoma
University of Oklahoma-Tulsa
ACP consultations through the University Center for Palliative Care. ou.edu/content/tulsa/community_medicine/palliative-care/ advance-care-planning.html
Oregon
Death With Dignity
Has led the legal defense and education of the Oregon Death with Dignity Law for nearly 20 years; links to ACP resources, including Alzheimer's and Dementia Mental Health Directive.
deathwithdignity.org
Pennsylvania
Coalition for Quality at the EOL
Engaging the community to build demand for better EOL care, building capacity among local health care institutions for the delivery of skilled and compassionate care, focusing attention on the regulatory and financial barriers to quality EOL care, and promulgating appropriate standards and measures; public awareness and educational campaigns.
dom.pitt.edu/dgim/iepc/cqel.html
Take Charge of Your Life Partnership
Educates, supports, and empowers people to deal with EOL issues through outreach to consumers, professionals, community organizations, and corporations. Site includes tool kits and Just Talk About It videos and discussion guides.
takechargeofyourlife.org
South Dakota
Life Circle of South Dakota (University of South Dakota)
Statewide collaboration of institutions, organizations, and people committed to improving EOL care; resources for community presentations on ACP, including EMT/EMS training for Comfort One (out-of-hospital DNR).
usd.edu/medical-school/life-circle-south-dakota/index.cfm Tennessee
Tennessee End-of-Life Partnership
Encourages and supports local grassroots coalitions to improve EOL care; resources for community presentations on ACP.
endoflifecaretn.org
Texas
The Y Collaborative
Provides EOL consulting services. Initiative of educator, leader, and life coach Dr. Susan Lieberman, with Nancy Rust in Houston, Texas; emphasizes conversation about ACP in advance of serious illness.
ycollaborative.com/blog
Utah
End-of-Life Care Partnership of Utah
Coalition of individuals and member organization that promotes dialogue with professionals and the public to support practices that improve care for persons near the EOL and their families. Tool kit for ACP.
carefordying.org
Vermont
Start the Conversation
Public education initiative on EOL planning by Vermont's nonprofit Visiting Nurses Association and Home Health and Hospice Agencies. In partnership with Vermont Ethics Network; education events and resources focused on conversation.
starttheconversationvt.org
Washington
Center for Palliative Care Education
Curriculum to improve EOL care for persons with HIV/AIDS and applicable to other illnesses; includes module on ACP.
depts.washington.edu/pallcare
Compassion and Choices of Washington
Assist with all aspects of EOL decision making; facilitate discussions about EOL choices between patients, physicians, and family members; includes Values Workshop to help explore EOL decisions and Alzheimer's Disease and Dementia Mental Health AD.
compassionwa.org West Virginia
West Virginia Center for End-of-Life Care
Sponsors Respecting Choices Facilitator Training to participants to assist patients and families with difficult EOL decisions and provides a method for converting patient's treatment preferences into medical orders that are recognized throughout the health care continuum; includes e-directory of ADs.
wvendoflife.org
Hospice of the Panhandle (Martinsburg)
Provides educational programs to the community about ACP. hospiceotp.org/index
Wisconsin
Honoring Choices Wisconsin
Statewide initiative of the Wisconsin Medical Society to build system change, advocacy, and education around ACP; working to make ACP a standard element of patient care; training provided by Respecting Choices.
honoringchoiceswisconsin.org
Respecting Choices (Gundersen Health System, LaCrosse, Wisconsin) Internationally recognized, evidence-based ACP program that has become the model for many other ACP initiatives. Provides assistance to other communities who want to transform how they provide EOL care. Uses a staged approach that is tailored to the individual's health status.
respectingchoices.org
Wyoming
Central Wyoming Hospice and Transitions (Casper)
Speakers bureau on issues of how to talk about death and dying and EOL decisions.
cwhp.org
