The Routledge Handbook of Disability and Sexuality

Medical dominanceThe politics of sex and disabilityThe queering of disability and sexualityDisability affirmative clinical practiceThe Nordic experienceDisability and sexuality in a globalised worldA diversity of current issuesSexual expression in institutional/quasi-institutional settings and the issue of sexual consentAgeiwg, disability and sexualityOverview of the bookConcluding thoughtsNotesReferencesI. Theoretical frames and intersectionsTHEORISING DISABLED PEOPLE’S SEXUAL, INTIMATE, AND EROTIC LIVES Current theories for disability and sexualityIntroductionTheorising sexual bodies and material selvesThinking through queer and cripDisHuman: Which way to the future?Drawing some conclusionsReferencesTHEORETICAL DEVELOPMENTS: Queer theory meets crip theoryIntroductionIntellectual disability and sexualitiesIntroducing crip theoryPeople labelled/with ID already “cripping” sexualitiesWhat crip theory brings to sexualitiesConclusionNotesReferencesTHINKING DIFFERENTLY WITH DELEUZE ABOUT THE SEXUAL CAPACITIES OF BODIES AND THE CASE OF INFERTILITY AMONGST MEN WITH DOWN SYNDROMEInfertility amongst men with Down syndromeThinking about bodies: Essentialism and its discontentsThe Deleuzian materialist ontologyAffectAssemblagesCase studyBiologyLegislationReproductive technologiesEconomic forcesSex education and policies around sexualityAttitudesWhat it all meansWhat else can an infertility assemblage do?What else can this framework do?ReferencesA CRITICAL RETHINKING OF SEXUALITY AND DEMENTIA: A prolegomenon to future work in critical dementia studies and critical disability studiesIntroductionScholarship on sexual rightsAbjection, disability and sexualitySexuality and dementiaRelational and embodied ethic of sexualityDiscussionConclusionReferencesCOMBATING OLD IDEAS AND BUILDING IDENTITY: Sexual identity development in people with disabilitiesDisability identity developmentSexual identity developmentSexual identity development in people with disabilitiesSexual identity development in sexual minority individuals with disabilitiesConclusionNoteReferencesSEXUALITY AND DISABILITY IN BRAZIL: Contributions to the promotion of agency and social justiceIntroductionSexuality and disability in Brazil: A brief overviewBiomedical model: Normalisation, pathologisation and médicalisationTheoretical and methodological contributions: Promoting agency and social justice in sexualityConclusionNoteReferencesII. Subjugated histories and negotiating traditional discoursesSEXUALITY, DISABILITY AND MADNESS IN CALIFORNIA’S EUGENICS ERACalifornia eugenics“Moral imbeciles”: Girls and women targeted by eugenicsA co-history of disability, madness and sexualityNotesReferencesDISABILITY RIGHTS THROUGH REPRODUCTIVE JUSTICE: Eugenic legacies in the abortion warsIntroductionHistorical interdependencies: Racial, disability and reproductive oppressionEugenic legacies in disability reproductive justiceConclusion: Interdependent reproductive justiceReferencesSEXUALITY AND THE DISREGARD OF LIVED REALITY: The sexual abuse of children and young people with disabilitiesIntroductionThe early decades of the coloniesThe present and the disability reform agendaPersons with disabilitiesUnderstandings of disabilityUnderstandings of sexuality for children and young people with disabilitiesAbuse in the lives of children with disabilities in AustraliaRoyal Commission into Institutional Responses to Child Sexual AbuseEveryday lives of children with disabilitiesContemporary responses to keeping children safeConclusionReferencesSEXUALITY AND PHYSICAL DISABILITY: Perspectives and practice within Orthodox JudaismIntroductionJewish historical and legal contextSexuality and physical disability in Jewish thought and practiceSexualityIntersectional challengesFamily puritySexual expressionMarriage and community lifeConclusion and future directionsAppendix IReferencesIII. Politics, policies and legal frames across the worldSEXUAL CITIZENSHIP, DISABILITY POLICY AND FACILITATED SEX IN SWEDEN1IntroductionThe policy frameworkSexual citizenship: From theory to practiceDisabled peoples’ perspectivesPersonal assistants’ perspectivesManagers’ perspectivesThe Social Committee of the Swedish National Board of Health and Welfare’s Ethics BoardDiscussionNotesReferencesSEXUAL HEALTH AND DISABILITY IN ZIMBABWEIntroductionModels of disability in ZimbabwePolitical will in promotion of rights, including sexual rights, of people with disabilitiesPolicy on sexual and reproductive healthSex education and people with disabilitiesAttitudinal barriers by services providers in ZimbabwePhysical barriersInaccessible informationPrivacyDisabled people organisationsPovertyResearch by government and academiaConclusion and recommendationsReferences“TICK THE STRAIGHT BOX”: Lesbian, gay, bisexual and transgender (LGBT+) people with intellectual disabilities in the UKIntroductionResearchPolicy and practiceSocial/support groups for LGBT+ people with learning disabilities in EnglandGroup beginningsGroup processBarriersAre things getting better?Discussion and conclusionsAcknowledgmentsReferencesSEXUALITY AND SEXUAL RIGHTS OF YOUNG ADULTS WITH INTELLECTUAL DISABILITY IN CENTRAL JAVA, INDONESIAIntroductionRegional contextDisability policy and disability experiences in IndonesiaSexuality and disability in IndonesiaDiscussion of research findingsConclusionReferencesADVANCE CONSENT AND NETWORK CONSENT1Capacity and its legal regulationLiability and social normsAdvance consentNetwork consentConclusionNotesReferencesIV. Representation, performance and mediaMISSING IN ACTION: Desire, dwarfism and getting it on/off/up—a critique and extension of disability aestheticsDefining and theoretically framing disability in the visual artsThe art of being sexual in Intimate EncountersThe process and product of my “intimate encounter”The process and product of “being sexually me”Disability aesthetics during Intimate Encounters, “being sexually me”ReferencesSEX, LOVE AND DISABILITY ON SCREENHistoricising sex and disability on- and off-screenExploiting sex and disability in Tomorrow’s Children (1934)Fetishizing female disability and victimhood in Johnny Belinda (1948)Narrating disability, sex and loveNoteReferencesDYNAMICS OF DISABILITY AND SEXUALITY: Some African literary representationsDisability and sexual rights in Africa: A background surveyMapping the theoretical frameIntersections of disability and sexuality in Gappah’s “An Elegy for Easterly”The Beggars’ Strike: The dirt tropeConclusionNotesReferencesFLAUNTING TOWARDS OTHERWISE: Queercrip porn, access intimacy and leaving evidenceIntroducing cultures of undesirabilityManaging in/visibilityShameExclusionControlCultivating otherwise: Access intimacy and queercrip pornIntroducing queercrip pornDisruptionFlaunting our whole messy selves, “tires and all”Leaving evidenceFlaunting back: Reclaiming agency or “yelling to the stars”Conclusion: Resilience, tiny purple feathers of queercrip possibilityNoteReferencesDESEXUALISING DISABLED PEOPLE IN THE NEWS MEDIAIntroductionDisability, sexuality and contemporary mediaLaw and mediaRepresenting disability and sexualityConclusion: Reimagining communication and consent in disability and sexualityAcknowledgementsReferencesV. Sexual narratives and (inter) personal perspectivesUNDERSTANDING THE LIVED EXPERIENCES OF TRANSGENDER YOUTH WITH DISABILITIESIntroductionTheoretical frameworkGender as fluidGender embodimentIntersectionalityMethod and participantsEmerging themesGender as fluidConflation of identitiesSociety and gender identitySociety and disability identityIntersecting identitiesDifference as strengthConclusionReferencesFLOWING DESIRES UNDERNEATH THE CHASTITY BELT: Sexual re-exploration journeys of women with changed bodiesIntroductionMethodInsights(In) ConclusionAcknowledgementsFundingNotesReferences(IL)LICIT SEX AMONG PWDS IN TRINIDAD AND TOBAGO: Sexual negotiation or compromise?IntroductionCarnival, colour and sex as occupationSexual apartheid and the disabled bodyMethodologyInterlocutor profilesSexual apartheid = sexual injusticeConclusionReferencesREIMAGINING SEXUALITY IN THE DISABILITY DISCOURSE IN SOUTH ASIAIntroductionDisability and sexuality in IndiaBeliefs about sexuality in IndiaPerson is politicalSearching for self and sexuality in therapyMapping the terrain of the cultural contextPredicament, resistance and changeSex educationDisability and sexuality: Some positive changesConclusionNotesReferencesDISABILITY AND ASEXUALITY?IntroductionThe emergence of asexuality as an identity and field of studyThe asexualisation (and re-sexualisation) of disabled bodiesMutual negationLiving the intersectionEmbodied identitiesEmotional labour and self-managementDisability negating asexuality?RecommendationsNotesReferencesTHROUGH A PERSONAL LENS: A participatory action research project challenging myths of physical disability and sexuality in South AfricaIntroductionDisability and access to sexuality and sexual health in South AfricaDisability and sexuality: Stories from South AfricaAbout usAbout the projectStudy 1:A survey of societal attitudesStudy 2: Photovoice qualitative studyStories from societyStories from people with disabilitiesFinal reflectionsNotesReferences“THAT’S MY STORY”: Transforming sexuality education by, for and with people with intellectual disabilitiesIntroductionBackgroundSexual Lives and Respectful RelationshipsStories of sexuality and relationships: The voices of people with an intellectual disabilityHannah’s story: “It’s hard to get privacy”Kevin’s story: “I’ll spend my life with her”Molly’s story: “My dream is to get married”Angela’s story: “I like to go on trains”Hussein’s story: “Don’t tell me parents, it’s a secret”Hearing from more hidden voices: LGBTQ people with intellectual disabilityCarol’s story: “To be the way I want”Soraya’s story: “Not the nothing girl”Emmet’s story: “Less lost than I used to be”Deepening understanding: Expanding the SL&RR programmeLGBTQ people with intellectual disabilityConclusionReferencesVI. Accommodation, support and sexual well-beingSEXUAL WELLNESS FOR OLDER ADULTS WITH A DISABILITY: A life course perspectiveIntroductionSetting the stagePurpose and frameworkConceptualising older PWD sexual citizenshipThe culture of ageismThe culture of ableism and intersectionalityEnvironmental supports and constraintsBiopsychosocial and cultural aspects of sexual wellness for older PWDsBiologicalPsychologicalSocial/relationalCultural/environmentalSupporting sexual citizenship and wellness across the life courseCall to actionReferencesTOWARD SEXUAL AUTONOMY AND WELL-BEING FOR PERSONS WITH UPPER LIMB MOBILITY LIMITATIONS: The role of masturbation and sex toysIntroductionResearch purpose and designThe promotion of pleasure via the use of sex toysThe use of sex toys by individuals with disabilitiesThe assessment of masturbatory practices and their use in support of the co-design of adapted sex toysSession 1: Individual semi-structured interviews with participants with motor disabilitiesSession 2: Individual co-design interviews with participants with motor disabilitiesSession 3: Focus group with professionalsData analysisResults of the studyDeveloping prototypesRethinking sexual pleasure and well-being in the context of disabilityConclusionReferencesPAID SEXUAL SERVICES FOR PEOPLE WITH DISABILITY: Exploring the range of modalities offered throughout the worldIntroductionThe right to sexual expression and pleasureSex workServices offeredGeographical locationPricing structureService aims and objectives and client motivationAvailability and eligibility of service providers and clientsOrganisations who may facilitate training and referrals between service providers and clientsSexual surrogacyServices offeredGeographical locationPricing structureService aims and objectives and client motivationAvailability and eligibility of both the service provider and the clientOrganisations who may facilitate trainingSexual assistantsServices offeredGeographical locationPricing structureService aims and objectives and client motivationAvailability and eligibility of both the service provider and the clientSpecific organisations that facilitate training and referrals between service providers and the clientsMasturbation servicesServices offeredGeographical locationPricing structureService aims and objectives and client motivationAvailability and eligibility of both the service provider and the clientSpecific organisations who may facilitate trainingSimilarities among service modalitiesDifferences among service modalitiesAutonomy of choiceTypes of services availableFinancial structureFrequency of service deliverySecuring an appointmentGeographical location and availability of servicesConfidentiality protocols established for the servicesConclusionReferencesPROMOTING SEXUAL WELLBEING FOR WOMEN WITH DISABILITIES THROUGH FAMILY-CENTRED INTEGRATED BEHAVIOURAL HEALTHCAREIntroductionIntegrated careDisability and cultureWWD and sexualityDisability culturally competent sexual healthcareCritical clinical issues influencing sexual well-being for WWDAbuseDepressionReproductive HealthAssessment and treatment of sexual health and well-beingGeneral assessmentBrief sexual health assessmentTreatmentConclusionReferencesOCCUPATIONAL THERAPY’S ROLE EMPOWERING SEXUALITY FOR INDIVIDUALS WITH DISABILITYIntroductionImportance of sexuality for people with disabilitiesReasons for occupational therapy’s reluctance to address sexualityOccupational therapy and people with disabilitiesEnabling sexuality for all: Occupational therapy interventionsOccupational therapy and sexuality assessment and interventionsOccupational empowerment framework and rights-based approachIncreasing assetsIncreasing capabilitiesTransforming choices into actionAccomplishing desired actions and outcomesCurriculum focused on unlearning harmful and misleading messagesConclusionReferencesDISABILITY AND SOCIAL WORK Partnerships to promote sexual well-beingIntroductionSocial work with disabled peopleBarriers to practitioners engaging with sexual well-beingOvercoming barriers to sexual well-being-engaged practiceUnderstanding the lawCitizenship and social justiceUsing models of sex counselling in social work practiceApproaching sexual well-being through specific aspects of well-beingPersonal dignityPsychological and emotional well-beingProtection from abuse and neglectRelationshipsConclusionReferencesINTERSECTIONS OF DISABILITY, SEXUALITY, AND SPIRITUALITY WITHIN PSYCHOLOGICAL TREATMENT OF PEOPLE WITH DISABILITIESIntroductionDefinitionsDemographicsPsychology and religionReligion/spirituality and health outcomesTraditional religious practicesNon-traditional religious practicesCultural competenceReligious/spiritual traditions and their views on disability and sexualityDisability and the physical practice of religion/spiritualityDisability and sexualityAssessment and clinical considerationsConclusionNoteReferences
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