Handbook of community-based participatory research
Overview of Community-Based Participatory ResearchWhat Is Community-Based Participatory Research?PROCESSUSE OF COMMUNITY-BASED PARTICIPATORY RESEARCHAddressing Health DisparitiesShared Decision-MakingCommunity Advisory BoardsReciprocal Transfer of ExpertiseSustainability, Evidence Translation, and Dissemination of Research FindingsInnovations in Health Promotion and Community-Based Participatory ResearchSummaryReferencesCommunity-Based Participatory Research Study Approaches Along a Continuum of Community-Engaged ResearchFocus Groups and Other Qualitative Research MethodsTypes of Intervention StrategiesINTERVENTION RESEARCH METHODSQUASI-EXPERIMENTAL AND NONRANDOMIZED STUDY DESIGNSMultilevel Health Intervention StudiesDissemination and Implementation ResearchSummaryReferencesResearch Methods and Community-Based Participatory Research. Challenges and OpportunitiesIssues Related to Institutional Review BoardsAdvancement and Promotion for ResearchersLessons LearnedFORMING PARTNERSHIPSASSESSING COMMUNITY STRENGTHS AND DYNAMICSIDENTIFYING PRIORITY HEALTH CONCERNS AND RESEARCH QUESTIONSDESIGNING AND CONDUCTING ETIOLOGIC, INTERVENTION, AND/OR POLICY RESEARCHFEEDING BACK AND INTERPRETING RESEARCH FINDINGSTRANSLATING AND DISSEMINATING RESEARCH FINDINGSOther Lessons LearnedTRUST IN THE TEAMEMBRACE CRITICSBUILDING AND SUSTAINING PARTNERSHIPSConclusions and RecommendationsReferencesThe Use of GIS/GPS and Spatial Analyses in Community-Based Participatory ResearchReview of Participatory GIS MethodsRationale for Community-Based GIS and Spatial Analytic MethodsVolunteered Geographic Health Information: Using Citizen Science to Collect and Visualize GIS DataTen Ways GIS and Spatial Analytics Can Be Used for Community Engaged Health ResearchChallenges, Alternative Approaches, and Ideas for Future DirectionConclusionReferencesEthical Issues in Community-Based Participatory Research StudiesMinimizing Risks and Providing BenefitsRECRUITMENT STRATEGIESDISSEMINATING RESULTSInformed ConsentDistributional JusticePrivacy and Confidentiality ProtectionInstitutional Review Board ReviewDiscussionReferencesCommunity-Based Participatory Research Studies in Faith-Based SettingsTerminologyRe Ligio n/Spiritua Lity— H ea Lth Con nectionExplanatory MechanismsChurch-Based Health PromotionTHE AFRICAN AMERICAN CHURCHCapacity for Health PromotionSummary and Future DirectionsReferencesSpecial Issues in Conducting Community-Based Participatory Research Studies with Ethnic and Racial MinoritiesRECONNECTING WITH A FAMILIAR PROCESSCULTURE AND CULTURAL HUMILITYCBPR with Hispanic GroupsHISPANICS IN THE UNITED STATESCONSIDERATIONS FOR CONDUCTING CBPR WITH HISPANIC POPULATIONSCBPR Among African American GroupsREACHING PEOPLE WHERE THEY AREEXAMPLE OF CBPR IN AFRICAN AMERICAN CHURCHESCBPR Among Asian AmericansHEALTH RISKS AND BEHAVIORSBARRIERS TO RESEARCH PARTICIPATION AND UTILIZATION OF HEALTHCAREEXAMPLES OF SUCCESSFUL CBPRCBPR Among Native AmericansSTEPS FOR CONDUCTING CBPR RESEARCH IN AIANLESSONS LEARNEDSummaryReferencesCommunity-Based Participatory Research Studies Involving ImmigrantsUS Immigrant Populations and Health DisparitiesImmigrant-Specific StressorsTraditional Research Studies and Immigrant HealthResearch Benefits of CBPR That Involves ImmigrantsOverview of CBPR Studies Involving ImmigrantsCase Study: Latinos Unidos por La SaludConclusionReferencesApplying a Community-Based Participatory Research Approach to Address Determinants of Cardiovascular Disease and Diabetes Mellitus in an Urban SettingBackgroundCARDIOVASCULAR DISEASE AND DIABETES EPIDEMICSCardiovascular DiseaseCorrelates of Cardiovascular Disease and DiabetesEconomic ImpactsRacial/Ethnic DisparitiesRisk FactorsRELEVANCE OF POLICY, SYSTEMS, AND ENVIRONMENTAL CHANGE APPROACHESLIMITATIONS OF EXISTING COMMUNITY-CLINICAL LINkAGESMENTAL HEALTH CORRELATESIntervention Approaches for Addressing DMII and CVDFraming the Local Context Through Community-Based Participatory ResearchTHE PREVENTION RESEARCH CENTERTHE COMMUNITY-BASED PARTICIPATORY RESEARCH FRAMEWORKA COMMUNITY-DRIVEN INFRASTRUCTURERESEARCH PARTNER COMMUNITIESCOMMUNITY HEALTH NEEDS ASSESSMENTData SourcesMoving from the CHNA to ActionFraming the Solution Through a Transdisciplinary, Multilevel ModelCOMMUNITY-BASED PARTICIPATORY APPROACH (CBPA)POLICY, SYSTEMS AND ENVIRONMENT PRIORITIESINCREASING HEALTHFUL FOOD ACCESSINCREASING OPPORTUNITIES FOR PHYSICAL ACTIVITYCOMMUNITY CLINICAL LINKAGESMENTAL AND BEHAVIORAL HEALTH INTEGRATIONCENTRAL COLLABORATORS AND STAKEHOLDERSKEY EVALUATION QUESTIONSConclusionReferencesCommunity-Based Participatory Research Addressing Infant MortalityPrevention of Infant MortalityThe Role of CBPR in Addressing Infant MortalityDiscussionConclusionReferencesColorectal Cancer Disparities and Community-Based Participatory ResearchCancer of the Colon and RectumEPIDEMIOLOGYCommunity-Based ParticipationLEARNING THE COMMUNITY ECOLOGYESTABLISHING A COMMUNITY COALITIONPLANNING THE PROJECTCONDUCTING THE PROJECTANALYZING AND DISSEMINATING THE RESULTSFOLLOW-UPAn Illustrative ProjectReferencesCommunity-Based Participatory Research Studies on Breast and Cervical Cancer ScreeningThe Public Health Importance of Breast Cancer and Cervical CancerDisparities in Breast and Cervical Cancer in the United StatesPrimary Prevention of Breast CancerPrimary Prevention of Cervical CancerEarly Detection of Breast Cancer Through Screening MammographyEarly Detection of Cervical CancerRole of CBPR in Addressing Breast Cancer and Cervical Cancer in Diverse CommunitiesCBPR IN ACTIoN To PREVENT CANCERSUMMARYDiscussionReferencesOverview of Community-Based Participatory Research in Environmental HealthFuture of CBPR in Environmental HealthAcknowledgmentsReferencesCommunity-Based Participatory Research Studies on Interpersonal ViolenceThe Population Health Importance of Interpersonal ViolenceThe Linkages of Poverty and ViolencePrevention of Interpersonal ViolenceThe Role of CBPR in Addressing Interpersonal Violence in Diverse CommunitiesDiscussionReferencesUsing Community-Based Participatory Research Approaches in HIVPositive Spaces Healthy Places (Ontario, Canada) the community needSalud es Outturn (Southwest US-Mexico Border Region) the community needBuilding a Safe House on Firm Ground (International, Led by Salamander Trust) the community need and visionDiscussionAcknowledgmentsReferencesEngaging Communities in Translational ResearchThe Clinical and Translational Science Awards ProgramFrameworks and Models for Community EngagementCommunity Advisory Boards and Their Role in CTSA Community EngagementEvaluating Academic-Community PartnershipsCTSA Pilot Study Grant ProgramsCTSA Training Programs in Community-Based Participatory ResearchResearch InstituteDiscussionReferencesRecent Trends in Community-Based Participatory ResearchFuture DirectionsMajor ConclusionsReferences