Genetic counselling about cancer predisposition

This chapter highlights many of the issues surrounding genetic testing, such as non-directive counselling, relationships within families, testing in childhood, prenatal testing and pre-implantation genetic diagnosis.

Guided activity for Chapter 33

? Drawing on Case study 1 in Chapter 33, consider how the oncology team might have managed Sylvia’s family history differently and the challenges this might have raised.

Further resources for Chapter 33

British Society for Human Genetics 2010. Report on the genetic testing of children 2010.

Birmingham: British Society for Human Genetics.

Harper P 2010. Practical genetic counselling, 7th edn. London: Edward Arnold.

Riley BD, Culver JO, Skrzynia C, et al. 2012. Essential elements of genetic cancer risk assessment, counseling and testing: updated recommendations of the National Society of Genetic Counselors. J Genet Counsel 21: 151-161.

Psychosocial issues and supporting individuals with a family history of cancer

The psychological issues raised by a cancer family history are addressed throughout the book but this chapter draws together the research in the area and the strategies for helping individuals to come to terms with these difficult issues.

Guided activity for Chapter 34

? Reflect on the information and support about cancer family history and/or genetics that is provided by the cancer charities in your specialist area. How accessible is each website? Is the information clear, comprehensible and accurate? Is there professional/ peer input? What support is provided for individuals or families concerned about family history? Is a helpline or chat room provided? When was the website last updated? Would you direct your patients to the website? If not, why not?

Further resources for Chapter 34

Meiser B 2005. Psychological impact of genetic testing for cancer susceptibility: an update of the literature. Psycho-Oncology 14: 1060-1074.

Patenaude AF 2005. Genetic testing for cancer. Psychological approaches for helping patients and families. Washington, DC: American Psychological Association.

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